Or “Adventures in Navigating the Special Needs Services System.” Also, possibly, why parents need a Ph.D. to navigate and endure the difficulties in just trying to get their child the support they need.
Long story short, youngest was formally diagnosed with autism over seven years ago. Being that she’s soon going to be a teen, we’d like a new assessment. (We don’t expect they’ll tell us that she’ll be “cured” of autism; we’d like an accurate snapshot of her abilities and her problems to aid her high school and post-secondary instructors.) At a marathon meeting in June with one of the umbrella agencies that administer to special needs children in our part of Ontario (where I had to go over all her file and paperwork which, somehow, never completely tracks from one agency and system to another), I made the request.
The agency bounced the ball back in my court early in July, suggesting that, since our daughter’s in the school system, that perhaps the school system could get her seen to more quickly than they could manage (though they’d put her on their list, anyway). I had to bide my time until fall to put the request to the board since they’re closed for vacation. When I did so at our September school meeting, I hoped that we’d hear something soon. Well? Today, youngest’s school agenda contained an email printout from the school board offices. Apparently, I should contact the agency that told me to contact the school board, because this is their job, not the board’s. (That’s news to the agency, I am sure.)
This afternoon, I left a message with the agency staffer, double-checking that they have, as promised in June, put her on the waiting list for reassessment. In any case, it’s going to be a long wait and a lot of work just to keep on top of it. And this is just one of the bureaucratic boondoggles we have to face on her behalf. The people that we meet with are all caring, thoughtful and concerned individuals. Collectively? The systems frustrate far more than they function.